It has been forever since I have updated on here. I finally got my power chair, and I love it. I am working with vocational rehabilitation, department of human services, department of rehabilitation, career link, and United Access to try to get a vehicle that I can use to get the chair inside a vehicle, rather than carrying it on the outside on a wheelchair carrier. I am having a hard time using the heavy gate, a hard time balancing and standing while strapping the chair to the carrier. I am having a tougher time getting all of these departments to work together.

I have one semester left at Spoon River College! Yay! I have 5 classes to take this semester. I also got inducted into Phi Theta Kappa Honor Society! After that, it is on to Western. The only problem with that, however, is that it is a 30 mile trip to WIU, and a 30 mile trip home. Not sure how often I will have class, this means that I have GOT to get the wheelchair thing taken care of.

Dislocations have been becoming more frequent lately, but not as painful. Does that make sense? To anyone with EDS, have you experienced this? I'm not saying it is without pain... far from it! But I have noticed that the same dislocation may be an 8 on a scale of 10, rather than an 11 out of 10. I wonder if the joints are sliding in and out more easily, or if my pain tolerance has increased. Maybe a combo?

I tried a Tempurpedic bed at the back store the other day. HEAVEN! I want the cloud luxe! I felt like I was laying on a marshmallow! I noticed that the pain in the joints would disappear for the few moments that I was laying on that! Now if anyone has a spare $4,000...

Hope to post more soon!
Angie